On 25 April, members of the ADIS Advisory Board gathered online for a consultation on the value of being informed of having Alzheimer’s disease in the stage of Mild Cognitive Impairment. The meeting was facilitated by Project Officers Soraya Moradi-Bachiller and Ana Diaz (Alzheimer Europe), and attended by the neuropsychologist Andrea del Val Guardiola (Fundació Clínic per a la Recerca Biomèdica, Spain) as well as Jesús Rodrigo (Confederación Española de Alzheimer, Spain).
Soraya and Andrea started by giving a short overview of the Alzheimer’s disease continuum, explaining the difference between being at risk of developing Alzheimer’s disease (AD) and being diagnosed with the disease. The members of the Advisory Board were then asked to provide their views on the value of people knowing they have AD in the Mild Cognitive Impairment stage (MCI due to AD) for the person being told. The members and their supporters were then asked what societies can do to improve the lives of people diagnosed with MCI due to AD and to avoid excluding them from being the active members they already were before being diagnosed with the disease.
The discussion was lively and all the members of the Advisory Board gave insightful and important contributions to the consultation.
For more information about the Advisory Board and our work in Public Involvement, visit: https://www.adis-project.eu/public-involvement/